Hockey Camp and the Start of School

One of the last things that we do during summer is go to hockey camp. Our hockey camp is week long, 9 to 4 and has two ice sessions. During the day we do off-ice drills, arts and crafts and having fun getting on the ice.

Scott, dad and I were in a van with a couple other of the players. We would go by these houses and the boys would say which house they liked or they would talk about football or hockey. After camp ended they were somewhat quieter and had the hockey stink badly. Phew! (Scott would probably laugh if you told him he smelled bad.)

One of the topics that came up during camp was how much the boys have grown over the years. The Cool Cats are in their 10th year and everyone has their own story about how they got started or their favorite memory about the Cool Cats. From seeing their kid touch the puck for the first time or them be more social or even how they learned about the team. Every one of those players has a different story that I love to see and it's inspirational to see how a lot of them have come.

When my brother started he was shy, was learning how to speak and to be more social. I have seen so much progress in him just from these past years. Scott will say hi to everyone and ask you your name. He won't tell you his name but he's getting there. When my mom was in Pennsylvania visiting family with my brother and my dad she told us that Grandma was kidding around with Scott about who gets the big fries. (Scott picks out all the big fries for himself and will scream NO if you say you are going to take the big fry) My mom was very happy that he learned how to communicate and that he loves to talk about everything.

Tomorrow, Scott starts his Senior year of high school. Yes, I said Senior year. I can't believe it either. Scott loves school and can't wait to be back. Now he has to get out of his PJ's. :)

STORY TIME: When Scott was younger he hated school. He would sit at the table and cry his eyes out when he had to do homework or had to read. It was the hardest and longest thing to get Scott to do his homework. Now Scott comes home and sits right down to do his homework. It is a complete 360 from what he used to be.

We hope that everyone has a great first day! Watch out for school buses. Hopefully we will get a picture of Scott before he heads off to school.

Not everyone will understand.

Here's your warning. You will need some tissues. I know I did. 

Over the years I've come to realize that not everyone will understand. From the time my brother and I were little to now it's gotten easier. We've learned how to deal with it. As a sibling of a person with a disability you want to help them in every way you can but there are some instances that you can't. For me it's hard hearing these stories and not being able to be there for my brother because of the distance. When my mom told me this story my friend and I immediately broke into tears.

Not everyone will understand why your kid screams at the top of his lungs in the middle of the restaurant when he looks old enough to talk. Not everyone will understand why your kid hits himself, flaps his arms or has ticks. Not everyone will understand why it takes him a couple minutes to answer your question, repeats the same thing over a couple of times and not know how to word their sentences.

Not everyone will understand. They just won't. Even if we educate them. They just won't understand. It's a whole different world living with someone with a disability. That they will probably never have a chance to see. That's one important lesson I learned.

When I was younger I used to hate to go out with my brother because his way of communicating was to scream. I remember one time we went out to dinner and my brother started screaming. A lady who was near us said to the person she was with, "Why can't they control their child?" Not knowing my brother had Autism. Not knowing that it was his way of communicating. Scott didn't start speaking until he was 8 and now he talks up a storm.

Scott and I got to go to high school for a couple of years together. I'm so grateful for going to Park View because a lot of the students accepted Scott. One day while I was in lunch I saw him walk by and give someone a high five, say hi and had the biggest smile on his face. He loves to give high fives and make people smile. That's what he's good at. You could have had the worst day ever and Scott would give you a high five and say hi.

This weekend my mom, my sister and brother came to Pennsylvania for our two cousin's baptisms. My brother is not known for crying but when he does he is upset or sad. At this time I could understand why he's upset. In the past two years we have lost our Aunt Barb and our grandpa. It's been a hard time for Scott to comprehend. It's been another hurdle we had to jump over. Not being in this situation before it was a rough one. I think he is starting to realizing that they are no longer with us. My mom had to pull Scott out of church so he could cry and well.. Here's how my mom put it.

My family and I have never been really religious because my brother couldn't sit through a church service.

Sometimes we just need to cry and if I was there with my brother I would have probably cried with him. It's hard seeing all the pictures that they took and not seeing my aunt or my grandpa. I will admit. I can't imagine what is going through Scott's head. It breaks my heart seeing and hearing that he was crying and not really knowing how to put the words into terms that he can understand.

Sometimes people just don't understand & probably never will even if we do educate them.

Spring Break.

Spring Break was a great chance for me to spend time with my family. I even got to take Scott to his last basketball practice of the season. Every time I take him to basketball he gets in the car 10 minutes before were actually suppose to leave then when I'm walking to the car he reaches over and opens the door for me. Before I leave I always ask him are you ready to go & he says yep let's go.
We went through this routine when I was home for winter break & all last year. I miss driving Scott to basketball and seeing everyone there. We picked up Michael and then we were on our way. The same way passing the hospital every time.
That weekend they were preparing for the State games. In which that his team (the Rebels) took home 3rd place. I'm really proud of Scott.
I asked him if he was nervous & he said yeah i was nervous. There was one team who was taller than him. Naturally he backed off because he was taller.
After that day we went out for my parents 20th wedding anniversary. Congrats mom & dad.

I am doing a 5 page paper about Autism. It's very interesting to hear about the first person who was diagnosed with Autism. He was really smart. He could tell you how many bricks were in his high school just by looking at it.